Zeitpunkt Nutzer Delta Tröts TNR Titel Version maxTL Mi 10.07.2024 00:00:00 51.211 +49 2.182.055 42,6 Vivaldi Social 4.2.10 1.337 Di 09.07.2024 00:01:21 51.162 +41 2.178.939 42,6 Vivaldi Social 4.2.10 1.337 Mo 08.07.2024 00:01:05 51.121 +48 2.178.512 42,6 Vivaldi Social 4.2.10 1.337 So 07.07.2024 00:00:03 51.073 +43 2.174.783 42,6 Vivaldi Social 4.2.10 1.337 Sa 06.07.2024 00:00:28 51.030 +43 2.171.323 42,5 Vivaldi Social 4.2.10 1.337 Fr 05.07.2024 00:00:08 50.987 +26 2.167.586 42,5 Vivaldi Social 4.2.10 1.337 Do 04.07.2024 00:00:11 50.961 +42 2.163.949 42,5 Vivaldi Social 4.2.9 1.337 Mi 03.07.2024 00:00:04 50.919 +42 2.160.792 42,4 Vivaldi Social 4.2.9 1.337 Di 02.07.2024 00:01:14 50.877 +42 2.156.674 42,4 Vivaldi Social 4.2.9 1.337 Mo 01.07.2024 00:01:17 50.835 0 2.153.375 42,4 Vivaldi Social 4.2.9 1.337
Iain MacLean (@iainmaclean) · 12/2022 · Tröts: 40 · Folger: 10
Mi 10.07.2024 23:34
It looks like I have a new option for treating my myeloma blood cancer with pomalidomide.
I am eligible given that I relapsed last year and turned out to be refractory for lenalidomide. We had considered trying to get it under compassionate access or self-funding it, but as I had already had a mini-stroke (TIA) last year, we weren’t sure it was worth the clotting and stroke risk.
I’ve unexpectedly stabilised since December on a combo of Dexamethasone and four-weekly blood transfusions, so we’ve decided to give the pomalidomide a go.
Pharmac says it will be available from 1 August and that’s our target date to start. I’ll take it in conjunction with the current Dex regimen.
Apparently 30% of people refractory to lenalidomide respond positively to pomalidomide. Those sound like good odds to me for trying something new.
We’re also told that we should see any positive result within 6 weeks to 3 months, which doesn’t seem too long to wait to decide whether to persist or stop.
Feeling a mixture of enthusiasm about trying a new generation of a drug that might actually work, and apprehension about side effects, mostly clotting and lower platelet numbers. I’ll need more frequent blood transfusions.
But, we don’t want to regret not taking the opportunity that might give me a few more months.
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